Showing posts with label Information Therapy. Show all posts
Showing posts with label Information Therapy. Show all posts

Wednesday, February 19, 2014

Using Information Therapy to Put Patients First ! New Edition with lots of new Cartoons!




Our new edition of Using Information Therapy to Put Patients First ( with lots of new cartoons) is now available for free download at  http://www.slideshare.net/malpani/using-information-therapy-2014-upload

The Indian healthcare system is ailing. There are too many patients, and not enough doctors . The increasing tension and mistrust between doctors and patients is just making a bad situation even worse !

HELP believes that patients are the largest untapped healthcare resource – and that Information Therapy – the right information at the right time for the right person – can be powerful medicine !

Information Therapy can help you get better medical care by:
  • Promoting Self Care , and helping you to do as much for yourself as you can 
  • Helping you with Evidence-Based Guidelines , so that you can ask for the right medical treatment that you need – no more and no less
  • Helping you with Veto Power, so you can say No to medical care you don’t need, thus preventing overtesting and unnecessary surgery .

 Please share this with your friends as well !


Dr Aniruddha Malpani, MD
Medical Director
HELP – Health Education Library for People
Ashish
Tardeo
Bombay 400 034
India
Tel. No.:65952393/65952394


Helping patients to talk to doctors !

Information Therapy is the Best Prescription – www.informationtherapy.in   !
Putting Patients First Conferences at www.patientpower.in

Read over 20 health books free at www.helpforhealth.org

Read my blog about improving the doctor-patient

Check out the Healthwise Knowledgebase at http://www.healthlibrary.com/healthwise !


Thursday, July 12, 2012

Information Therapy


Deliver the Right Information at the Right Time

Healthwise wrote the book on information therapy (Ix®), the practice of “prescribing” the right information to the right person at the right time. The concept has since been accepted across the health care world and recently became part of CMS “meaningful use” requirements for electronic medical records.

Give people the content they need to make better health decisions

In 2002, Healthwise founder Don Kemper and Healthwise senior vice president Molly Mettler co-wrote Information Therapy: Prescribed Information as a Reimbursable Medical Service, the book that introduced the concept of information therapy. In the book, they looked forward to the day when “every clinic visit, lab test, prescription drug, or treatment ... every hospital admission and every change in hospital-based physician orders” would result in patients getting just the information they needed to make sense of that clinical encounter. Don and Molly envisioned that every information prescription would be built in to the reimbursement formula for clinic and hospital visits. In the years since the book was published, many of the things they imagined have become a reality.

The future is now

The value of patient education as an important part of care is becoming more and more expected. Evidence of this can be found in the recent “meaningful use” requirements, which include these examples of Information Therapy:
  • Care instructions as part of hospital discharge instructions
  • Patient instructions as part of clinical summaries
  • Patient-specific educational resources identified by EMR technology*
  • Prevention services reminders to patients*
    * = optional category for Stage 1
Health care organizations are now using Healthwise content and technology for their own form of Information Therapy—automatically delivering targeted information to specific patients. Our “intelligent” coding allows automated matching of our health content and tools to the needs of a specific patient at a specific time in his or her care. Clinicians and health coaches can then quickly choose the right decision aid, patient instruction, action plan, interactive tool, or virtual coaching conversation for that moment of care. Staying within their normal workflow, clinicians can deliver just the right information to just the right patient at just the right time.
With Healthwise information therapy, delivering patient education becomes a standard of care you can count on. You give your clinicians the power to quickly find and prescribe up-to-date, trustworthy, and appropriate information and tools. And you save people the time and confusion of searching the Internet for information that’s easy to understand and act on.
Information therapy helps people make the most of every care encounter. And it helps you meet meaningful use requirements. We’ve got an Information Therapy solution for every setting. Let us know where you’re trying to go. We’ll help you get there.
Read the book at Health Education Library for People

Monday, June 18, 2012

Information Therapy - The Expert Pharmacist





Watch this short video and pass it to each contact on your email list.  Lets’ create awareness and make this video go viral !



Information Therapy - Turning Patients Into Empowered Experts !

Traditionally, Indian patients were passive and were quite happy to leave all medicaldecisions to the doctor.

However, times have changed, and internet positive patients are hungry for information and want to work in partnership with their doctor.
This is a huge challenge -- and a great opportunity as well. We feel patients are the largest untapped healthcare resource and that Information Therapy is Powerful Medicine !

Patients often complain that they can never understand anything their doctor says. This is usually because doctors use medical jargon but you should never get intimidated by this! You just need to remember that such jargon is simply a convenient shorthand which doctors ( and other health care professionals) use to communicate with each other. Since these words are often derived from the classic languages ( Greek and Latin), they may sound unfamiliar and difficult to understand, but if you devote enough time and take enough trouble, you can definitely do so. Read More….



Friday, June 8, 2012

Information Therapy - Doctor Rude





Watch this short video and pass it to each contact on your email list.  Lets’ create awareness and make this video go viral !

Information Therapy - Helping Doctors to Regain Their Bedside Manners!

Traditionally, Indian patients were passive and were quite happy to leave all medicaldecisions to the doctor.

However, times have changed, and internet positive patients are hungry for information and want to work in partnership with their doctor.
This is a huge challenge -- and a great opportunity as well. We feel patients are the largest untapped healthcare resource and that Information Therapy is Powerful Medicine !


Do keep in mind that doctors are also human, and they are badgered by their own share of problems. On certain days they may seem rude or curt; on such days, give them a little leeway and a lot of understanding!

The following terms can be very helpful when you talk to your doctor:
Please tell me more about that.
What does that mean in simple English?
Could you explain that to me again?
Could you write that down for me?
Where can I find more information about this subject?
You seem rushed.
When can I call you to talk about this in more detail?

Try to do your best to become an ideal patient, and learn to take an active interest in your medical care. After all, this is the only body you have! It's a simple fact of life that patients who know how to make the most of their doctor get better medical care. Therefore, it's very important that you learn how to do so !

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Wednesday, May 2, 2012

Information Therapy - Communication Confusion





5 reasons to make this video go viral
– its funny, its very helpful, its amazing and its spectacular
So go ahead and spread good health !

INFORMATION THERAPY


Watch this short video and pass it to each contact on your email list.  Lets’ create awareness and make this video go viral !
                        
Do you use complicated medical terms which sounds like Greek and Latin to your patients ? Why should you use Information Therapy ?
Traditionally, Indian patients were passive and were quite happy to leave all medicaldecisions to the doctor.
However, times have changed, and internet positive patients are hungry for information and want to work in partnership with their doctor.
This is a huge challenge -- and a great opportunity as well. We feel patients are the largest untapped healthcare resource and that Information Therapy is Powerful Medicine !

Subscribe to Patientpowervideos:
Health Library on YouTube


Patients often complain that they can never understand anything their doctor says. This usually because doctors use medical jargon --- but you should never get intimidated by this! You just need to remember that such jargon is simply a convenient shorthand which doctors ( and other health care professionals) use to communicate with each other. Since these words are often derived from the classic languages ( Greek and Latin), they may sound unfamiliar and difficult to understand, but if you devote enough time and take enough trouble, you can definitely do so. Remember that it's not a secret code which is being used to keep you in the dark! If you have difficulty in understanding medical terms, you can ask your doctor to help you. … Read More


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Read the Book:  Using Information Therapy to Put Patients First
 



Monday, October 10, 2011

Using Information Therapy To Put Patients First






Information Therapy: Times of India 10th October, 2011








Information Therapy: Asian Age 10th October, 2011






Tuesday, September 13, 2011

HOW INFORMATION THERAPY HELPS PATIENTS TO MAKE SENSE OF THEIR MEDICATIONS

2nd Annual Conference
USING INFORMATION TO PUT PATIENTS FIRST
Free Registrations: www.patientpower.in


Mrs Kapoor visited her GP for a ‘nagging pain’ in the stomach. Her GP prescribed her a course of antacids. While Mrs Kapoor did get some temporary relief with the medicines, she decided to visit a specialist. The specialist gave her stronger tablets and she took them, while also continuing her GP’s medication. This interaction of drugs exacerbated her problem, and she found herself back to square one. As an educated patient, Mrs Kapoor should have informed the specialist of the medicines that she had been taking. It might well have resulted in a different prescription and a better outcome.

The right drug for the right patient in the right dose by the right route at the right time: this golden rule sums up the ideal prescription – and it seems like such a basic and simple rule. What’s disturbing is how often this rule is broken today in daily medical practice. The good news is that Information Therapy prescriptions can ensure that we follow this simple rule. Medicines are powerful – and every drug can have beneficial effects and undesirable effects. Information Therapy makes sure that the following questions have been clearly answered before taking any medicines.

What should you do if you are taking other prescribed or over-the-counter medicines? What are the short- and long-term risks associated with the medicine? Are there less risky alternatives? What should you do if you inadvertently miss a dose? The list is not exhaustive. As a patient, it is your right to ask as many questions as you wish to clear any doubts.

Your first step should be to read what your doctor has written (no matter how illegible the writing may be), and to clearly understand what the 'hieroglyphics' mean. Don't leave with questions unanswered: ask your doctor or chemist for an explanation of any confusing terms on your prescription. A very useful reference book you should consider purchasing is the Indian Drug Review. This book is easily available at any medical bookshop and is an excellent compilation of details on all the prescription drugs available in India: for instance, their cost; dosage; therapeutic action; drug interactions; and side-effects. Though this book has been written for doctors, it is easy enough for any layperson to use. Not only will this book help in understanding the medicines you are taking, but it may also help you to save money, since you can select a less expensive brand of medicine, after discussing the matter with your doctor.

Your doctor can also help you save money by prescribing generic drugs. ‘Generic’ means that the drug is not protected by trademark registration; and the generic name of a drug is usually a shortened form of its chemical name, so that any manufacturer can use it when marketing a drug. Usually, a manufacturer uses a trade name (or brand name) as well as a generic name for a drug, and you should be able to identify the generic name and the trade name of every drug you are taking. Generic drugs are generally priced lower than their trademarked equivalents, largely because the former are not as widely advertised as the latter. Also, do keep in mind that for certain drugs, it is not advisable to 'shop around' for an alternative, because differences can exist between brands of certain drugs.

The amount of medicine you buy at a particular time depends on several factors, the most obvious one being how much money you have, or how much the insurance company will pay for each purchase. Medicines to treat heart disease, high blood pressure, and diabetes may be purchased in bulk because you will need to take such medicines for prolonged periods. The chances are that you will pay less per tablet or capsule by purchasing large quantities of drugs, and save quite a bit of money: do ask the chemist for a bulk discount!

While medicines are useful in the treatment of certain illnesses, the overuse of drugs has taken its toll, not only in the form of unnecessary expenses but also in the form of sickness, and even death, as a result of an adverse reaction to the medicine. Patients still believe that there is a pill for every ill - and this desire for instant relief translates into billions of rupees for millions of pills, potions, ointments and powders. The pharmaceutical industry in the second-most profitable in the world –right after illegal drug trafficking! Most people take one medicine at least weekly, and more than 25% of the world’s population consumes drugs on a daily basis. Most patients are not happy unless the doctor prescribes a medicine for them - whether or not they really need it. Often, doctors too will contribute to this ‘overmedication syndrome’, and the huge advertising budgets as well as the largesse of pharmaceutical companies lure them to continue doing so on a regular basis.

You must, however, understand that no drug is without its side-effects - after all, anything that has the potential to benefit your body also has the potential to do harm. A 'therapeutic effect' is a desired effect, and a 'side-effect' is an undesired effect - but both are simply effects of the same drug on the body, and go hand in hand. Remember that 80 percent of all ailments are self-limiting and require no treatment. Therefore, think carefully about the costs and risks as well as the benefits before taking any medicine.

You should be especially wary when your doctor prescribes the ‘latest’ and newest drug. For one, such a drug is likely to be much more expensive than its 'older' counterparts. Drug companies nowadays spend large amounts of money in order to induce doctors to prescribe their newest products, because they are much more profitable for them. Also, remember that newer does not always mean better - in fact, new drugs may be more dangerous. Since they have not been used for long enough, some of their harmful effects may not become apparent until many patients consume them over a long period of time. Older medicines, which have been tried and tested over many years, are a safer bet, because doctors have considerable experience with them, and are aware of their risks and benefits. For example, Duract, a new non-steroidal anti-inflammatory drug (painkiller), was withdrawn from the market just a year after being approved for use in the USA (after having undergone rigorous testing), since it was linked with a dozen cases of liver failure, four of them fatal!

Surprisingly, no one knows how many deaths, injuries, and side-effects prescription drugs cause each year - there is no agency which monitors these effects. Who's responsible for this modern epidemic of drug-induced disease? All of us! Pharmaceutical companies, for a less-than-rigorous study of their approved drugs; physicians, who incorrectly prescribe drugs, or over prescribe the 'latest' drug; patients who don't follow instructions or don't tell their physicians about the other drugs they are taking; and even government agencies for not monitoring drug safety more effectively. As a patient, you can help to protect yourself from a therapeutic misadventure by not opting for a newly approved drug unless there aren't any other, well-established alternatives.

Older people are especially prone to the problem of unnecessary drugging. Often, once a doctor starts a patient on a medicine, the latter continues taking it, whether or not he needs it anymore. And each specialist adds to the drug overload, without having a clue about what else the patient is taking. Not uncommonly, it turns out that only one or two of the assortment of drugs is really needed and, once the unnecessary medicines are eliminated, the patient starts feeling much better. In contrast to today's enthusiasm for drugs, it is wiser for you to be a ‘therapeutic nihilist’, in order to let the body heal itself whenever possible.

What can you do to help prevent medication errors? The answer is simple. Learn to ask questions. Just because you haven't been trained as a doctor doesn't minimize the important role you play in preventing errors with regard to your medicines, or those for your family. By the very process of asking questions about your medicines, you understand why you are taking them, how to take them, and what to expect so that you can detect potential errors. The most common causes of medication errors are: similar drug names, similar packaging and labeling, and illegible prescriptions.
The following factors should always be borne in mind:
Avoid medicines to the extent possible. Pregnant women, for example, generally get along fine without drugs (or with very few drugs).
Periodically, bring all your medicines, including over-the-counter drugs, to your doctor for review. Ask your doctor for an information prescription, so you can check for drug side-effects and interactions. Be skeptical of patently extravagant claims made by pharmaceutical advertisers.

Remember that ‘big guns’ are not needed to treat self-limiting or non-dangerous diseases, and that side-effects of medicines may well create more problems than the original illness.
Take oral medicines as far as possible. Such medicines are usually equivalent to injections, and are both cheaper and safer. Many patients still naively believe that injections are more ‘powerful’, but this is purely a myth!
Beware of physicians who prescribe new medicines at each visit without modifying or discontinuing previously prescribed drugs. Many patients are not happy unless the doctor gives them a medicine for their problem, even if this is not required - and many doctors are happy to pander to their patient's fancy. In fact, many patients still judge the calibre of the doctor by the length of his prescription and by the cost of the medicines he prescribes!

Taking two or more drugs at a time can complicate matters considerably, since they can interact with each other, resulting in either adverse effects, or a reduction in their efficacy. The best way of minimizing this problem is to limit the number of drugs you consume, taking only what is strictly necessary.

OTC drugs

Drugs that can be purchased without a prescription are referred to as over-the-counter (OTC) drugs, and these have become a worldwide phenomenon in the present era of globalization. Common OTC medicines include pain relievers, laxatives, cold-relieving preparations and antacids. They are consumed rather indiscriminately by millions of people, but think carefully before purchasing an OTC drug. Do you really need a medicine in the first place? For example, rather than popping a sleeping pill into your mouth every night, a glass of warm milk may provide a better solution for your insomnia. Similarly, simple measures such as steam inhalation and salt-water gargling can provide as effective relief from a sore throat as can medicines. Unfortunately, most people would rather take a pill for every ill. More than 100 OTC drugs are available for treating the common cold - none of which have been shown to be effective.

Just because a medicine is available over the counter does not mean it is completely safe, and you should always check with your doctor before taking it. Sometimes, OTC drugs can actually be harmful. For example, taking painkillers over many years can cause kidney failure and swallowing tablets to self-treat a fever may mask certain illnesses such as tuberculosis or malaria. Don't just depend on a friend's advice or on your chemist's suggestions: always discuss OTC drugs with your doctor.
Discuss your medication with your chemist. Unfortunately, chemists still represent a very underutilized resource in India. Every chemist's shop must have a duly qualified and trained pharmacist. Pharmacists are professionals who have done a four-year course in a pharmacy college and are knowledgeable about medicines and their effects. If you have any doubts, seek out the pharmacist in the chemist's shop; the clerk or the shopkeeper may not know anything about medicines.

You should be able to identify your medicines properly. Many errors are made at home by taking a wrong tablet or capsule that appears similar to another family member's medication. The ability to recognize your medicines can help in preventing you from taking the wrong drug. If you believe an error has occurred, contact your doctor, pharmacist, or nurse as soon as possible. Do not take the medication until all your doubts have been dispelled.

As far as possible, patronize the same chemist for prescriptions drugs as well as over-the-counter drugs. A complete record of your medication history can be kept at the chemist's shop, and some modern chemists have now installed computers that allow them to store the details of the medicines you are taking. This precaution is especially important if more than one physician has been prescribing medicines. A competent pharmacist can also spot hazardous combinations of medicines, and help you avoid possible dangerous drug interactions.

Always keep medicines in their original containers. Many drugs look alike and this can cause an ‘identification crisis'.
Never use another person's medication; and never experiment with medicines just because a friend recommends them. Similarly don't ‘play doctor’ by lending your medicines to your friend or relatives.
Discard all medicines once they have reached their expiry date.
Always remember that you are the one taking your medicines. Therefore, ensure that you are well informed about them, so that you can take them safely. Every time a medicine is prescribed, please make sure that Information Therapy is prescribed with it as well. In most instances, it is as important as the medicine itself!

Friday, September 9, 2011

How I prescribe Information Therapy in my practice


2nd Annual Conference on
Using Information Therapy to Put Patients First
To Register visit: www.patientpower.in

Dr.Aniruddha Malpani, MD, Founder, HELP

My patients, Mr and Mrs Gupta, are sitting in the waiting lounge of my clinic, awaiting their turn. The usual gamut of magazines is in front of them. But do these serve any purpose? Instead, my receptionist gives them a comic book about IVF, so they can learn more about their treatment options. This puts them in a better frame of mind, and many of their doubts get resolved even before they come in. The beauty of Information Therapy is that it can be used in many innovative ways !

I am an IVF doctor and I put my heart and soul into treating my patients. IVF is often the last resort for infertile couples, and, understandably, these couples will have countless questions about IVF. This is an expensive treatment, and they are investing immense time, hope and energy in building their family. Since the outcome of IVF is always uncertain, they have a lot of doubts and misgivings. These are still many myths and misconceptions surrounding IVF, and many women are worried that IVF babies are ‘weak’; or that all IVF pregnancies are multiples; or that the hormonal injections taken for IVF will make them fat or cause them to develop ovarian cancer in the future. Moreover, infertility often impacts the entire family (and not just the couple), and many decisions about medical treatment are made in consultation with many family members.

I proactively use Information Therapy to clear doubts and answer questions. This helps ensure that everyone is on the same page. Since I provide this information, patients are reassured that I am open and transparent. They know they are in safe hands, because they can see that I am well informed and knowledgeable. The fact that I am an expert in my field makes them put their faith in me.

Information Therapy needs to be embedded in clinical workflow, and we start providing Information Therapy well before the patients come to us for a consultation. We do this online, using many channels, including our website (www.drmalpani.com) ;
videos on youtube (http://www.youtube.com/user/aniruddhamalpani);
and social media, including twitter (http://twitter.com/#!/drmalpani) and facebook
( www.facebook.com/Dr.Malpani) .

Web-based information prescriptions have major advantages:

(1) I can update the information quickly and easily.
(2) The information is accessible to all my patients around the world. Using Google translate, patients can read it many different languages!
(3) The information can be presented in an interactive and engaging manner through the use of animation and videos ( www.ivfindia.com) .
(4) Delivering the information does not cost me anything.
(5) Patients can absorb and review the information at their own pace – and for free!

Isn’t all this expensive? Who has the time to do all this? Yes, it is expensive and time-consuming, but the beauty is that once you have done it, you can use it many times, for many patients, and over many years! ‘Create once, use multiple times’ is a very cost effective proposition. Updating and maintaining content is much easier once you are familiar with the process.
Even better, you can get your patients to contribute to your online resources. For example, we have a section called Success Stories (http://www.drmalpani.com/ivfsuccessstories.htm). We request our patients to write about their infertility story and their experiences at Malpani Infertility Clinic and then upload this to our website. This first person account helps other infertile couples when they are making decisions regarding their treatment, as they are getting information from someone who has been there, done that! We also encourage our patients to act as email buddies, to help other infertile couples in distress. I always remind my patients that helping others is a great way of helping yourself.
The Internet has become an important source of health and medical information. However, a significant amount of health-related information on the Web is inaccurate, unreliable or untrustworthy. By creating our own content, we can direct patients to information that is of high quality, appropriate to their condition, and consistent with our approach to treatment. This helps them to save time and stops them from getting confused or misled. Patients still depend on doctors to provide the most credible answers to their health questions!

In addition to providing Information Therapy online, we also provide it in the real world. When patients come to the clinic for a consultation, we give them with an IVF comic book while they are waiting for an appointment. Thanks to such Information Therapy, my consultations have become much easier. I do not have to waste time going over the basics and can focus quickly on the patient’s key concerns. The fact that I am an author reinforces their confidence in my professional competence and helps to reassure them that they are in safe hands. Doctor shopping is a fact of life in today’s world, and since we provide this information proactively, our patients prefer coming to us, because they can see that we are open and transparent.
All our educational materials help to ensure that patients have realistic expectations of their treatment. While it is true that our success rates are excellent, it is also a fact that the outcome of any IVF cycle is always uncertain, and patients need to be prepared for failure. Reading about this in black and white helps them to understand the limitations of our technology.

Patients often forget a great deal of what is told to them. This is why we give them a DVD to take home, which they can review at leisure – often with other family members. This helps to reinforce my message, and it also ensures that we stand out amongst the other IVF doctors that they have visited. During and after the IVF treatment, we encourage patients to remain in touch by email. I find this a very efficient way of answering questions. This way we don’t have to play telephone tag – and since everything is in writing, patients don’t get confused or forget things! We also have a FAQs page on our website, while helps us to proactively reassure patients and put their doubts to rest.
We know that different patients have different learning styles, which is why we use myriad tools to deliver Information Therapy. On our site at www.ivfindia.com, we have developed a wide variety of educational tools, including e-learning courses, animated cartoon films, games, and you tube movies. Providing this kind of Information Therapy has helped me to become a better doctor. It ensures that I look at the world through my patient’s eyes, so it is easier for me to be empathetic. Also, because we help patients to have realistic expectations, they don’t get emotionally shattered if the cycle fails and they are able to cope better with the IVF emotional roller coaster !

Saturday, September 3, 2011

HOW INFORMATION THERAPY CAN PROMOTE SAFER CARE



2nd Annual Conference on
Using Information Therapy to Put Patients First in India:

Register Now !



Dr.Nikhil Datar,
MD DNB FICOG FCPS LLB FICOG DGO DHA
Consultant Gynaecologist, Dr.Balabhai Nanavati Hospital

HOW INFORMATION THERAPY CAN PROMOTE SAFER CARE

Rajan Madhok,MB BS MSc FRCS FFPH ,
Medical Director, NHSManchester,ENGLAND
and GAPIO Lead on Patient Safety


Nikhil Datar
MD DNB FICOG FCPS LLB DGO DHA
Consultant Gynaecologist,HindujaHospital, Mumbai
and Commonwealth Fellow 2009, NHSManchester,ENGLAND
Correspondence to rajan.madhok@btinternet.com

Most patients agree that Information Therapy makes sense. Owing to the anxiety when one visits a doctor, a majority of patients forget half of what the doctor tells them. In such instances, a summary sheet at the end of the consultation can be helpful. An electronic medical record can also ensure that all the information is easily available in one place. This results in a more holistic assessment, and ultimately, better care. But can Information Therapy also help with ensuring safer care? And how can it do so? These are the issues we explore in this chapter. First though, a few words about patient safety and why it is so important.

WHAT IS PATIENT SAFETY

Hippocrates, the father of medicine, exhorted doctors to ensure that their patients did not suffer unnecessarily and his dictum, ‘First, Do No Harm’ (Primum non nocere) has been the guiding principle for doctors worldwide. Medicine in those days was empiric and literally a ‘hit and trial’ affair, which is why such a caution was needed. With the recent dramatic advances in science and technology, most people naively assume that although modern medicine cannot cure everything, it must be much safer. Whilst they would be largely right, it is wrong to assume that modern medicine is completely safe. 21st century medical care is much more complex, so organising and delivering it safely is a major challenge. Medical knowledge is evolving rapidly, making it difficult for doctors to keep up with newer trends. Since there are so many different players involved now (primary care physicians; organ specialists; nurses; physician assistants; hospitalists; technicians; medical informatics specialists; administrators), there is limited understanding of how healthcare systems can be made to function smoothly. Compared to other safety critical industries (especially aviation), medicine has not yet fully adopted the principles and practices necessary to ensure that complex health care can be delivered safely. The Institute of Medicine’s report ‘To err is human’ assessed that modern healthcare was the sixth leading cause of death; and that more deaths were caused by iatrogenic errors, as compared to breast cancer or road traffic accidents in the USA (Accessed 7 Aug 2011 http://iom.edu/Reports/1999/To-Err-is-Human-Building-A-Safer-Health-System.aspx). It has been estimated that almost one in ten patients suffers an adverse event in the hospital; and there is a one in 300 chance of dying in a hospital due to a medical error. Modern medicine is clearly a two-edged sword: on the one hand it can alleviate suffering and on the other hand it can cause harm. Patient safety therefore has become an important public health issue.

HOW CAN INFORMATION THERAPY HELP TO ENSURE SAFER CARE?

Let us take one example to see how this may work.

Healthcare-associated infections (HCAI), acquired in a hospital or clinic, are the most frequent adverse events in healthcare delivery worldwide. Millions of patients are affected by HCAI worldwide each year, leading to significant mortality and financial losses for health systems. Of every 100 hospitalized patients at any given time, 7 in developed and 10 in developing countries will acquire at least one kind of HCAI. The burden of HCAI is also significantly higher in low-income countries than high-income ones, especially in intensive care units and in neonates. For example, newborns are at higher risk of acquiring HCAI in developing countries, with infection rates three to 20 times higher than in high-income countries. (From http://www.who.int/gpsc/country_work/gpsc_ccisc_fact_sheet_en.pdf accessed 7 August 2011)

Practicing good hand hygiene is a simple measure that can dramatically reduce the chances of getting an HCAI. This led the World Health Organisation (WHO) to launch a global campaign to improve hand hygiene among healthcare workers: ‘SAVE LIVES: Clean Your Hands’ is a major component of ‘Clean Care is Safer Care’ and can help reduce the spread of potentially life-threatening infections in healthcare facilities.

This is not a new revelation and the benefits of hand hygiene have been well documented in the past. Semmelweiss in 1847 demonstrated that obstetricians could cut down dramatically the number of women dying after labour by simply washing their hands between deliveries. However, he had great difficulty convincing his colleagues to do so and was hounded out of his hospital attachments for daring to speak out against doctors. Sadly, getting healthcare professionals to change their existing practices has not become any easier since then!

This means we now have a choice. We can continue relying on healthcare professionals to follow good practice to protect patients from HCAI (even though we know that they will often not do so in real life); or we can explore whether patients can do something about it.

This is where information therapy can play an active role! It can be used for the following:

- Advising all patients of the importance of HCAI since not many patients are aware of the magnitude of the problem.

- Convincing patients and their relatives about hand hygiene and getting them to use disinfectant hand sanitizers while in hospitals. This is especially important inIndia, where relatives play such an important role in providing nursing care to patients.

- Making hospitals publish their statistics of hospital-acquired infections. Ideally there should be open reporting of data, showing trends and improvements over time.

- Getting patients to request the healthcare professional ‘touching’ them to wash their hands.

So, here is a sample Information Therapy prescription for a patient going into a hospital:

  1. Please be aware that hospitals are dangerous places and that your hospitalisation can cause you to acquire an infection.
  2. You can reduce your chances of getting an infection by limiting the number of your visitors; and by asking them to wash their hands and to use disinfectant.
  3. Do request your doctors and nurses to wash their hands before touching you or doing a procedure.

This kind of openness and transparency can empower patients; and reinforce the fact that the hospital is doing all it can to ensure that patients are safe and that the risk of errors is being actively minimised.

The Planetree model (www.planetree.org) is an excellent example of how hospitals can greatly improve patient outcomes and reduce patient errors by actively involving patient (and their family members) in medical care. It is the patient who has the most at stake; and by ensuring that patients are well informed, hospitals can help to reduce complications and errors considerably! This will help them to improve patient satisfaction scores and increase patient loyalty, which in turn will result in better hospital occupancy and boost their bottom line. It will also help to reduce the risk of lawsuits because of medical errors!

This prescription can be in the form of written notes, or in an audiovisual form since the use of multimedia can improve patients understanding and retention by over a third. In summary, Information Therapy increases the patient’s ‘ownership’ and helps the patient to explore alternatives by empowering them to choose appropriate care and set realistic goals. The doctor patient relationship becomes more open, based on partnership (rather than paternalistic) and shared decision-making can be achieved.

Information Therapy is equally useful in the doctor’s clinic as well. We all know that often a patient will need to visit different specialists. Unfortunately, as a result of this, care gets fragmented, and problems such as drug interactions are very common. By ensuring that the patient knows exactly what medications he is taking and why, these preventable problems can be avoided with the help of Information Therapy! Information Therapy acts like an immunisation against ignorance. It helps to make sure that things don’t fall through ‘in between the cracks’ and puts the patient back in charge!

CHALLENGES AND OPPORTUNITIES FOR INFORMATION THERAPY

To make information therapy work we have to address some challenges.

First, most people are still unaware of the problem of unsafe care: they believe that modern medicine is a force for good and that doctors and nurses are highly professional people and that they are in ‘safe hands’. So we do need to acknowledge that there is a problem and it is imperative to promote safer care. Second, we still do not know enough about the extent of the problem. How many incidents are occurring? Where? When? What kind? We need to ensure that appropriate data is collected. This will help us to understand the underlying causes of these errors and enable us to design solutions. Finally, do patients or their carers/relatives feel empowered enough to question, and indeed challenge, their doctors? Even doctors often shy away from questioning their own personal doctors when they are ill!

Information Therapy can be a major force in improving patient safety, and we need to create an ecosystem where patients can safely demand that they be given Information Therapy; and doctors feel comfortable doing this routinely and proactively.

The good news is that there are a number of organisations and initiatives to promote the involvement of patients in improving healthcare safety.

WHO Patients for Patient Safety

Patients for Patient Safety (PFPS) emphasises the central role of patients and consumers in improving the quality and safety of healthcare around the world. http://www.who.int/patientsafety/patients_for_patient/en/

Action against Medical Accidents

Action against Medical Accidents (AvMA) is an independent non-profit organisation that promotes better patient safety and justice for people affected by a medical accident. A ‘medical accident’ is where avoidable harm has been caused as a result of treatment or failure to treat appropriately. http://www.avma.org.uk/

Technology can help as well. We are learning how to design and deliver better healthcare, by looking at system designs, and hence are able to identify and eliminate steps where mistakes could occur. Information Technology has a very important role – and by having a unique identifier for every patient, and a single electronic health record, we can provide timely and accurate information to both patients and their doctors!

CONCLUSION

The delivery of the right information, at the right time, to the right patient, by the right doctors/nurses should no longer be left to chance; every patient should get this routinely as part of their care in the 21st century. Sir Muir Gray, the Chief Knowledge Officer of the NHS inEngland, talks of good quality information provided directly to the patients being the way forward for the transformation of healthcare. In the recent reforms being proposed by the Government in the NHS in England, the Minister has made it clear that he wants a health service where patients are in the driving seat, not as passive recipients of care but as equal partners with healthcare professionals – ‘No decision about me, without me’ – and this cannot happen without huge doses of information therapy. Let us use the opportunities available to us to overcome the challenges and get the care that we all want for ourselves and for our dear ones.

Wednesday, August 31, 2011

Patients can contribute to Information Therapy

2nd Annual Conference on Using Information Therapy to Put Patients First in India: Register Now !

What patients can contribute to Information Therapy?

Doctor Sourav Bose was finding it difficult to manage Mr Aditya Rao’s diabetes. Though he had changed the dose of the insulin thrice, his blood sugars remained high. He was at his wit’s end and did not know what to do. He put it down to “non-compliance” and wrote Aditya off as a “ difficult
patient “ ! He failed to recognize that by spending more time with his patient, delving into his lifestyle, and asking him why he was having a hard time with following the treatment plan, he could have come up with an effective solution. Aditya was as much to blame ! He should have discussed the practical difficulties he was facing with taking the insulin injections in his office, as advised by the doctor, instead of meekly accepting his doctor’s advise – and then failing to follow it !

Information Therapy traditionally means the prescription of the right information to the right person at the right time to help make a better health decision. However, if we accept the fact that patients are at the center of the medical universe and that it is patients who are the true experts on their illness, then an equally important part of information Therapy should be the provision of information from the patient to the doctor! After all, communication is a two-way street and the patient’s personal perspective is as important as the medical perspective through which the doctor views the world.

Why has this been neglected so far? Why don't more patients provide Information Therapy to their doctors? This kind of patient education has a long and respected history! While writers have written on what it is like to be a patient for hundreds of years, one of the most important books that taught doctors to re-look at things from the patient's perspective was Norman Cousin's classic, Anatomy of an Illness. In fact, there is now an entire a genre of books that does this very well. This is called pathography - a narrative that gives a voice and face to the illness experience, by bringing the person behind the disease to the forefront!

Pathography is a very useful teaching tool! It helps doctors to learn empathy, so they can learn to see things from the patient's perspective. For example, though I am an IVF specialist, I am not infertile myself. By reading first person accounts of the trials and tribulations faced by infertile couples, I learn a lot about the problems that my patients face – problems that they may not be willing to talk about when they meet me for the first time. All doctors learn medicine from their patients. As Sir William Osler said, ‘He who studies medicine without books sails an uncharted sea, but he who studies medicine without patients does not go to sea at all.’ Unsurprisingly, his best-known saying was ‘Listen to your patient, he is telling you the diagnosis,’ which aptly emphasizes how much a good doctor can learn from a patient!

Doctors usually remember their most challenging patients or their most complex and difficult cases all their life – these often form the defining moments in their professional career. It is true that these exceptional patients teach us a lot and good doctors treasure them, since they learn the most from them. These are a doctor's ‘memorable’ patients - many of whom teach us what not to do ! Intelligent doctors learn from their patients all the time, but this can only happen if patients are willing to teach them! These are the ‘expert patients’ - those who are articulate and treat their doctors as partners in their medical care.

Doctors can learn from every patient, but only if patients learn to speak up, and doctors learn to listen. It is not that doctors are going to learn medical facts from each patient – but each patient is unique and has valuable insights to offer. Patient feedback helps doctors to improve their services, and even complaints are gifts, when taken in the right spirit! Unfortunately, there are still many barriers to getting feedback from patients. Most patients are inhibited and scared and do not have the courage to displease their doctor by telling him the unpleasant truth. If patients want their doctors to do a better job, they need to learn to speak up. Most dissatisfied patients today just walk out of the doctor's clinic and never return. They find a better doctor - but by failing to give the doctor honest feedback, they lose the opportunity to help him improve and do a better job with his next patient. Similarly, most doctors are too busy to ask for feedback, and most continue deluding themselves that they do a perfect job with every patient!

Hopefully, the Internet will allow patients to offer critiques and criticism more easily. There are now many doctor-rating websites, where patients are encouraged to provide their opinion about their doctor. This kind of patient-generated content will help doctors to get their act together, if they are willing to keep an open mind and try to correct problems. Thanks to the Web, smart patients have adopted a number of clever initiatives towards improving medical care. These e-patients, of whom the most prominent is Dave, are speaking up and claiming their rightful place in the healthcare ecosystem, so that patients now have a voice which is heard, and more importantly, respected.

Online patient support groups have a lot of clout – and crowdsourcing the collective experiences of hundreds of patients can actually help advance medical research, as proven by innovative sites such as PatientsLikeMe (www.patientslikeme.com). Patients are also collaborating to fund clinical studies, so that doctors can do research on topics that are of interest to patients , and not just on areas which pharmaceutical companies find remunerative . Patients have also taken a lead role in simplifying medical research so that it becomes understandable to other patients. Cochrane Collaboration (www.cochrane.org) is a fine example of how it is important for researchers, providers, practitioners, and patients to collaborate. 28,000 people from over 100 countries work together to help healthcare providers, policy makers, and patients make informed decisions about healthcare. Such collaboration is imperative in today’s times. When individual knowledge turns into collective knowledge, medical care is substantially enhanced!


Tuesday, August 30, 2011

Second Pre-Conference Seminar@HELP - 3 Sep'11 11.30am

Invitation to
Second Pre-Conference Seminar@HELP on
Using Information Therapy to Put Patients First
on Saturday, 3rd September, 2011at 11.30a.m. at
HELP LIBRARY - Phone: 22061101, 22031133

Pls click here if you are unable to read this email:
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Using Information Therapy to Put Patients First
SpeakerTopic
Dr.Taufiq PanjwaniA medical intern’s perspective on the application of Information Therapy.
Dr.Ninad ManiarInformation therapy and the medical student – a feasible symbiosis
Dr.Akanksha N.ThakkarUsing information therapy to effectively deal with neurodevelopmental disorder related childhood stress
Dr.Mihir Gangakhedkar Information Therapy and Tackling Pandemics In Developing Nations
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